How And What My New Kidney And I Are Doing - Amy Brooks

I know, I know, there's been a lot of talk about my KIDNEYS lately.  I'm sorry about that.  Obviously it's been a huge thing for me, as I got a new kidney a little over 2 months ago now.  And I'm doing amazingly well.  I'm a new person. I feel great!

And I've had sooo many reach out to me asking if I would be willing to speak to some relative or friend of theirs who's also in need of a transplant or some who are considering being a donor like my angel of a friend who donated hers to me. And I have been happy to do so.  I'm happy to help answer any questions and give back any way that I can, including forming a walk team for the PKD Boston Walk.  Check out our team page HERE!! 

My angel donor is Sandra MacInnis.  She bounced back amazingly well and is actually on vacation right now in the Turks and Caicos! So her two kidneys have never been sooo far away from each other (as I sit and write this from Boston)!  Never will I ever really be able to return such a gift, a gift of life.  And in fact she saved my life because i do NOT know how people live a life on dialysis.  Quality of life sucks.

I wondered how I might be able to give back to those who haven't been as fortunate as I.  And here's what I've decided to do.  I'm gonna walk!  Only I can't do it without your help.   Join my team HERE for the Boston Walk For PKD or donate, no amount is too small, and is obviously incredibly appreciated.

My kidneys failed because of a life long condition I was diagnosed with when I was 16 called Polycystic Kidney Disease or PKD.  My mother always knew more about the disease and the PKD Foundation, but because I wasn't feeling sick until much later in my life (the past 5 years), I did nothing.  Now, she is gone (cancer) and didn't live to see me thriving on the other side of this amazing kidney transplant surgery.  But my mom, Dotty, has been, without doubt, my guardian angel.  I simply can't explain my amazing good fortune otherwise. And one little foot note...Sandra's mom's name?  Also Dotty. Love that!

Anyway, millions suffer with PKD world wide.  And there's pain involved for most (again I was lucky and didn't experience much pain) but worst of all the kidneys almost always fail.  The cysts grow and grow and take over the important working kidney tissue and polycystic kidney patients almost 100% of the time, end up in renal failure, needing a transplant or on dialysis.  Which SUCKS!!  Dialysis means you have to go into a center 3 times a week and sit hoked up to a big machine which does what a kidney would do, it filters the toxins from your blood, and it ain't fun.

So there's a Boston Walk For PKD and I'm going to walk this year for the FIRST time.  I've formed a team called Amy's 92.9 Army in tandem with my amazingly supportive radio station Alt 92.9.  The first person to sign up to be on my team?  My DONOR!!  I didn't even ask her.  She keeps volunteering for things!

So WALK WITH US!  The walk is along the Esplinade on September 30!  It's a nice, simple, under 3 mile stroll!  We got this! It's rewarding, it helps people AND you will be instantly entered to win a really cool Gavin Rossdale and Bush autographed electric guitar!

Ok ok, so you aren't up for walking, you have bunions, or you'll be washing your hair on September 30th... no worries, no judgement!  BUT perhaps you would be willing to donate some $$ to the cause?  Our team page link is HERE and it only takes a minute to ante-up a little do-re-mi to help find a cure for this damnable disease.  I'll even make sure you're still entered to win the guitar!

THANK YOU  THANK YOU  THANK YOU not only for reading this, but for all of your thoughts and well wishes and amazing comments through my journey to the other side of PKD.  Without you pulling for us, I doubt we'd have found the strength to have this amazingly favorable outcome.

I was one of the lucky ones, now it's time for me to give something of myself. i hope you'll help me accomplish my goal, I'd love to have you next to me when I do.

So Rock on and Walk on...for PKD!


Amy Brooks